Author Archives: nkf _advocacy

About nkf _advocacy

The National Kidney Foundation's advocacy movement is for all people affected by CKD, transplant candidates and recipients, living and potential donors, donor families and caregivers. We empower, educate and encourage you to get involved on issues relating to CKD, donation and transplantation.

Educating Congress about KidneyX’s Important Role in Accelerating Kidney Care

By Kevin Longino, Kidney Transplant Recipient and CEO of the National Kidney Foundation Earlier this month, I had the honor of joining several distinguished panelists to educate policymakers and request that Congress fund KidneyX at $25 million for FY 2021.  … Continue reading

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NKF Applauds Administration’s Focus on Kidney Health

On February 10th, the Administration released its vision for funding the U.S. government, including proposals to extend Medicare coverage for immunosuppressive drugs for kidney transplant patients.  This policy change could save the lives and transplants of thousands of kidney patients, … Continue reading

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Congressional Hearing Held on the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019 (H.R. 5534)

Congressmen Kind (D-WI) and Burgess (R-TX) have given the kidney community an amazing New Year’s present by introducing the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act of 2019 (H.R. 5534)! NKF has worked very closely with our Congressional … Continue reading

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New Rules to Help Organ Supply Crisis and Funding for Living Donors

On December 17th, the Administration and Congress took significant steps towards improving kidney disease policy and funding.  The National Kidney Foundation applauds these efforts to help the nearly 95,000 Americans waiting on a life-saving kidney transplant. The Administration announced two … Continue reading

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2019, The Year of Kidney Policy

The July launch of the “Advancing American Kidney Health” initiative (AAKH) was a watershed moment when the Federal government decided to shake up the treatment landscape to move from treating kidney disease to one that advances kidney health. The signing … Continue reading

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Bringing Your Kidney Disease Stories to Your Elected Officials

By Jason Nothdurft, Kidney Advocacy Committee member and kidney patient The National Kidney Foundation’s New Jersey Kidney Walk took place at Veterans Park in Hamilton Township, Mercer County, in late September. If you’re reading this, you probably already know the … Continue reading

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An Astounding Summer of Advocacy!

By Troy Zimmerman, Vice President of Government Relations These are exciting times at the National Kidney Foundation thanks in no small part to the dedicated efforts of grassroots advocates like you. Together, we continue working with federal and state legislators … Continue reading

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Get Desired R.E.S.U.L.T. from Your Stories

By Piper Hendricks, advocacy communications professional In the post below, I share my approach to storytelling. I designed the R.E.S.U.L.T. approach (acronym explanation to come) for storytellers with a mission – for people who, as we say at my nonprofit p.h. … Continue reading

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It’s Time to Broaden the Search for Solutions to Kidney Disease Management – the KidneyX: Patient Innovator Challenge Will Spotlight the Best Ideas Nationwide

By John R. Sedor, MD, FASN, Chair of the KidneyX Steering Committee and Kevin Longino, CEO, National Kidney Foundation Too many American families have known the pain and difficulty of chronic kidney disease. An estimated 37 million U.S. adults live … Continue reading

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Great Strides in Kidney Policy Through Patients’ Eyes

On July 10th, President Trump announced a bold vision for transforming kidney care for the estimated 37 million Americans affected by kidney disease. During his speech, attended by National Kidney Foundation (NKF) volunteers, patients, care partners and leadership the President laid out … Continue reading

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