Category Archives: Uncategorized

Kidney Patients Blaze a Virtual Trail on Capitol Hill!

On Wednesday, September 16th, more than 150 advocates from 43 states representing kidney patients nationwide and on behalf of the National Kidney Foundation (NKF), PKD Foundation, Alport Syndrome Foundation, and IGA Nephropathy Foundation met virtually with more than 160 legislators … Continue reading

Posted in Uncategorized | Leave a comment

COVID-19 Won’t Stop Kidney Advocates

By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient Always ready to take action no matter what, when or where, this week 150 kidney patient advocates from around the country will be Zooming with Members of Congress … Continue reading

Posted in Uncategorized | Leave a comment

Educating Congress Virtually This Week!

As the COVID-19 pandemic continues to have enormous impacts on our nation especially kidney patients, and the presidential election approaches, this is an ideal time for kidney patients, caregivers, living kidney donors and practitioners to make Congress aware of the … Continue reading

Posted in Uncategorized | Leave a comment

A step forward for home dialysis innovation

By Miriam Godwin, NKF Health Policy Director Each year, NKF provides input on what is known as the End Stage Renal Disease (ESRD) prospective payment system (PPS). This is an annual regulation put forth by the Centers for Medicare and … Continue reading

Posted in Uncategorized | Leave a comment

Advocating for kidney cancer patients “on” Capitol Hill

By Curtis Warfield, Kidney transplant recipient and Kidney Advocacy Committee advocate On Wednesday and Thursday Aug 12 and 13, 2020, I had to pleasure to once again speak to my members of the US Congress and their staff about kidney … Continue reading

Posted in Uncategorized | Leave a comment

Remembering Congressman John Lewis, Kidney Champion

By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient Most Americans know the late civil rights icon Congressman John Lewis (D-GA) for his role as a freedom fighter, his stewardship of the Student Nonviolent Coordinating Committee and … Continue reading

Posted in Uncategorized | Leave a comment

Immuno Bill Passes out of House Committee

Today the Immuno bill successfully passed a procedure hurdle in the House Energy and Commerce Committee. The House Energy and Commerce Committee marked up (aka reviewed and discussed) and reported out (issued their agreement to keep the bill moving to … Continue reading

Posted in Uncategorized | Leave a comment

Congress Ignores Urgent Kidney Needs

We continue seeing reports that those who contract COVID-19 are more likely to develop kidney disease, and it’s clear that one legacy of this virus will be an expanded American kidney patient population. That’s why we’re disappointed to see that … Continue reading

Posted in Uncategorized | 2 Comments

On my mind this week: Spikes, inequalities and kids

By Kevin Longino CEO of National Kidney Foundation and kidney transplant patient June 24, 2020 This week three issues are on my mind: the spikes in COVID-19 cases in states reopening and what that means for kidney patients, inequalities that … Continue reading

Posted in Uncategorized | 3 Comments

Kidney patient hospital visits in the age of COVID-19

By Jim Myers, kidney transplant recipient and NKF Kidney Advocacy Committee member and Mary Baliker, transplant recipient and Kidney Advocacy Committee Regional Captain Recently, we both had to visit our local medical facilities. For most people this might be concerning, … Continue reading

Posted in Uncategorized | Leave a comment