Author Archives: nkf _advocacy

About nkf _advocacy

The National Kidney Foundation's advocacy movement is for all people affected by CKD, transplant candidates and recipients, living and potential donors, donor families and caregivers. We empower, educate and encourage you to get involved on issues relating to CKD, donation and transplantation.

What does lifting COVID-19 restrictions mean for kidney patients?

By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient As the nation begins to see progress in our fight against COVID-19, some states will slowly begin opening but what does that mean for kidney patients? How can … Continue reading

Posted in Uncategorized | Leave a comment

Shortages, Support and Staying Safe during Medical Procedures

By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient Dialysis Equipment Shortages In last week’s blog I highlighted one of the underreported stories of COVID-19, which is that the virus wreaks havoc on your kidneys and a … Continue reading

Posted in Uncategorized | Leave a comment

Sounding the Alarm, Acute Kidney Injury, and Asking the Experts

By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient With ambulance sirens ringing out in most large cities across the U.S., NKF is sounding the alarm to ensure kidney patients receive the same access to lifesaving COVID-19 … Continue reading

Posted in Uncategorized | Leave a comment

Finding Community in Isolation

Some days, the quarantine seems normal; some days it hits me in a way that makes me think, “what in the world is going on?!” As I told my husband one day last week, this is not our first experience … Continue reading

Posted in Uncategorized | Leave a comment

“Appreciating the Simple Things”

By Kevin Longino, CEO of National Kidney Foundation and kidney transplant patient April 2, 2020 With 3 out of 4 Americans under some type of shelter in place, do not travel, or stay at home order, living with kidney disease … Continue reading

Posted in Uncategorized | Leave a comment

Kidney X Challenge fuels and funds patient innovation

Last week at NKF’s Spring Clinical Meetings Deputy Secretary of the U.S. Department of Health and Human Services Eric Hargan announced the 25 winners of the Kidney X Patient Innovator Challenge. This award provides cash prizes to patients, care partners … Continue reading

Posted in Uncategorized | 1 Comment

Challenges, Unusual Opportunities and A New Respect for Lace-Ups during COVID-19

By Kevin Longino, CEO ofNational Kidney Foundation and kidney transplant patient With each new week during the COVID-19 crisis we all find ourselves dealing with new challenges and some unusual opportunities. So, first some challenges. Dialysis, Moving to Home Our … Continue reading

Posted in Uncategorized | Leave a comment

Supporting you during the coronavirus pandemic

By Kevin Longino, CEO, National Kidney Foundation and kidney transplant patient I know the heightened concern you all have right now regarding the COVID-19 outbreak, and it can be unsettling. As a kidney transplant patient on a daily regimen of … Continue reading

Posted in Uncategorized | 1 Comment

The Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534) Passes House E&C Health Subcommittee

The House Energy and Commerce Health Subcommittee gave a gift to kidney transplant patients on March 11th, the day before World Kidney Day, when it unanimously passed the Comprehensive Immunosuppressive Drug Coverage for Kidney Transplant Patients Act (H.R. 5534). During … Continue reading

Posted in Uncategorized | 8 Comments

2020 Kidney Patient Summit Postponed

Over the weekend, the Centers for Disease Control and Prevention (CDC) updated its recommendations for older adults and people with kidney disease or other severe chronic medical conditions. They note that these groups appear to be at higher risk for … Continue reading

Posted in Uncategorized | Leave a comment