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Tag Archives: advocacy
Patients Living Longer on Dialysis
By Kerry Willis, PhD, NKF Chief Scientific Officer Over 450,000 Americans with kidney failure depend on dialysis to stay alive, and since 1999 survival rates have continued to increase among this highly vulnerable population, as summarized in the United States … Continue reading
Support Federal Funding for Kidney Disease Research and Programs
By Kevin Longino, Interim Chief Executive Officer, National Kidney Foundation Each year, federal funding for kidney disease must be appropriated by Congress. Important work is being done at the Centers for Disease Control and Prevention (CDC), National Institute of Diabetes … Continue reading
Posted in Advocacy, federal funding, public policy
Tagged advocacy, advocate, CDC, HRSA, NIDDK
10 Comments
Be a Part of NKF’s Kidney Patient Summit
The National Kidney Foundation (NKF) is hosting the 2nd Annual Kidney Patient Summit in Washington, DC, on March 2-3, 2015. Join us for this special National Kidney Month event as we unite as one voice to tell Congress about the importance of … Continue reading
Join NKF and Make a Difference
You may already follow the National Kidney Foundation (NKF) on Facebook, Instagram or Twitter. Maybe you read our blog posts or visit our website for information. But did you know you can also join NKF and become part of the … Continue reading
NKF Expresses Disappointment Over Dialysis Five-Star Rating Program
The Centers for Medicare & Medicaid Services (CMS) is planning to implement a new program to help patients and their loved ones better understand the quality of care delivered by dialysis facilities through a five-star rating system. While the National … Continue reading
How I Helped the Institute of Medicine Understand How to Better Involve Patients in Healthcare
By Caroline Wilkie I am a kidney patient who has been on dialysis for the past four and a half years. I am passionate about spreading awareness about kidney disease. So when I got an invitation to speak at the … Continue reading
Posted in personal story
Tagged advocacy, health care, healthcare, kidney, kidney disease
2 Comments
Medicare Rules that You Won’t Have to Choose Between Dialysis and Hospice if You Have a Terminal Illness
Dr. Beth Piraino, NKF President As a follow-up to our post End of Life Decisions for Dialysis Patients: Update on Proposed Medicare Rule, we are pleased to report that the Centers for Medicare & Medicaid Services (CMS) have affirmed that … Continue reading
Posted in public policy
Tagged advocacy, Centers for Medicare & Medicaid Services, CMS, dialysis, palliative care
2 Comments
NKF Presses for Immuno Drug Coverage and Research Funding
On May 1st, the National Kidney Foundation and 14 other leading kidney organizations participated in Kidney Community Advocacy Day in Washington, D.C. The event, organized by the American Society of Nephrology, brought together patients and physicians to press on two … Continue reading
National Kidney Foundation Volunteers Play A Key Role in Healthcare Research
Patient Centered-Outcomes Research Institute (PCORI), created by Congress as part of the Affordable Care Act, provides grants for research projects that will give patients and their health care providers “a better understanding of the prevention, treatment and care options available, … Continue reading
Posted in Uncategorized
Tagged advocacy, dialysis, kidney, kidney disease, National Kidney Foundation, research
1 Comment